Every time someone from Dr. G's office has called to give me an update on the donor, they've said something vague about how "things look good." To which I reply: "can you tell me specifically?" On Friday, Nurse of the Everchanging Nickname told me that her e2 level was rising appropriately and we'd have a clearer sense of follicle count on Monday.
So yesterday New Nurse left me an even vaguer message that said to stay at 4 estrace tablets (umm, I'm only on 3) and that retrieval looks like it will be Sat or Sun. When I called back for more info, I got another message saying that her largest follicle is at 12mm and she has "more coming up." What the fuck does that mean? Because if this were my cycle, frankly, that would mean I'd have 1 follicle at retrieval. And while I understand donors stim very differently than people with DOR, that kind of vague talk does not put my mind at ease that things are "going well."
Let's just say I left a message to that effect this morning, basically suggesting that if I don't hear specific enough information to put my mind at ease that she'll end up with more than the 7 follicles I could produce on an IVF cycle I WANT TO TALK TO DR. G ABOUT CANCELLING THIS.
Seriously, I cannot be the only DE patient who wants info as specific as 1 at 12mm, 4 at 10mm, 12 less than 10mm, etc. I realize she's a proven donor (x3). I realize she's also hyperstimulated (at least) once before. But, fuck, that doesn't mean anything for this cycle, particularly as she's had one cycle (her first) that didn't, I think, get to transfer because of the way she was stimulated.
Oh yeah, I'm relaxed.
Breathe. And update us once Dr. G calls back with better info.
ReplyDeleteNo, you're not the only one who wants hard facts, not vague reassurances, but I don't think many nurses understand how much we NEED to know these things.
Hoping you get a call with specifics soon.
Argh - so frustrating. I hate when they get all cutesy with the information. Numbers are important to sanity. I hope you get some answers soon.
ReplyDeleteI had a bit of the same deal w/my RE's office. I had a first-time donor and they didn't give me an antral follicle count, just said they didn't see anything that would preclude her from being a donor. I almost canceled right then. I made sure that during stims they gave me numbers and sizes of follicles, along with estrogen levels. Keep on their butts about giving you the info you want. fyi-we ended up with 15 or so embryos, transferred two on day 3, then ended up with none good enough to freeze on day 5. The two we transferred are 5 months old now. :)
ReplyDeleteWell, I've been informed now that it looks like she has 13-15 follicles so far. I'm hoping they'll give me something resembling ACTUAL numbers tomorrow. Thanks for the empathy!
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